Description
The Patient-Centered Outcomes Research Institute (PCORI) funded the National Patient-Centered Clinical Research Network, PCORnet. PCORnet leverages the power of electronic health data in a national distributed research network (DRN) to conduct patient-centered research. From 2014 to Fall 2018, PCORnet refined and expanded its infrastructure to engage a variety of stakeholders: researchers, patients and patient communities, clinicians, health systems leaders and payors. This panel will focus on the progress and outcomes of PCORI’s initiatives to strengthen PCORnet’s capacity for public health surveillance and population research. The panel will highlight innovative pilot projects conducted in collaboration with Sentinel and the Centers for Disease Control (CDC). Panelists will cover the unique attributes of PCORnet that make it opportune for public health research, as well as the challenges to building this capacity within PCORnet given the availability of data elements within PCORnet’s Common Data Model. This panel will showcase significant accomplishments across the PCORnet community in the areas of surveillance, infrastructure for population health research, and clinical research informatics.
Describe the new knowledge and additional skills the participant will gain after attending your presentation.: At the conclusion of this panel, participants will be able:
To define the infrastructure requirements for surveillance and public health research and to describe the means by which PCORnet addresses these requirements.
To describe informatics and technical tools developed and refined through collaboration in PCORnet.
To better understand the use of Electronic Medical Record (EMR) data and the PCORnet CDM for public and population health research.
The goal of this panel is to present information on the progress and outcomes of PCORI’s initiatives to strengthen PCORnet’s clinical research informatics and public health surveillance capacities. The panel will include four panelists each describing unique data modeling, feasibility, and capacity building projects within PCORnet.
Authors:
Tom Carton (Presenter)
Louisiana Public Health Institute
Maryan Zirkle (Presenter)
Patient Centered Outcomes Research Institute
Jason Block (Presenter)
Harvard Medical School
Kristin Lyman (Presenter)
Louisiana Public Health Institute
William Hogan (Presenter)
University of Florida College of Medicine
Shayna Barbash (Presenter)
Patient Centered Outcomes Research Institute
Presentation Materials: