Description
BACKGROUND: Collecting patient reported outcomes (PRO) improves quality-adjusted survival and reduces ED visits/hospitalization for cancer patients by identifying adverse events. There is a critical need to study the implementation. METHODS: Since May 2015, the Dana-Farber Cancer Institute (DFCI) has leveraged our integrated legacy patient portal to collect medical/surgical history, symptoms, baseline physical/mental/functional health status, allergies/medications, family/social history (since 7/2016) and electronic PRO (ePRO) using the validated PRO-CTCAE tool (since 1/2018). We created a governance team including an advisory group of patient advocates and experts in oncology, quality and patient safety, pharmacology, nursing, health services research and cancer care delivery to guide stakeholder working groups for content, implementation and analytics. Our team has implemented a variety of PROs in routine practice - comprehensive geriatric assessment, new patient screening/history questionnaire, distress screening, and PRO collection of treatment-related adverse events. RESULTS: We increased ePRO collection from <10% (patient portal) to nearly 70% of new patients and 98% of established patients (via mobile tablets), reflecting over 10,000 unique oncology patients, bypassing the barrier of portal enrollment (<40%) and limited computer access (20%). As a result, we have secured institutional and research funding to develop additional ePRO content, refine existing questionnaires, optimize data visualization for providers, implement data visualization and minimize question burden for patients, and develop ePRO-informed interventions. CONCLUSIONS: Translating the evidence of PRO benefits to oncology practice requires careful review of content, EHR integration, workflow assessment, provider and staff training, optimization, and data analysis. We will now focus on applications of ePRO to demonstrate value to our patients and identify specific areas to target meaningful interventions.
Describe the new knowledge and additional skills the participant will gain after attending your presentation.: Implementation strategies for patient reported data and outcomes program
Transforming "little" data into big data - use of feasibility pilots to propel program development
Authors:
Nadine McCleary (Presenter)
Dana-Farber Cancer Institute
deborah schrag, Dana-Farber Cancer Institute
Jason Johnson, Dana-Farber Cancer Institute
janet bagley, Dana-Farber Cancer Institute
sylvia bartel, Dana-Farber Cancer Institute
naomi lenane, Dana-Farber Cancer Institute
gabriela spear, Dana-Farber Cancer Institute
andrea pusic, Dana-Farber Cancer Institute
joseph jacobsen, Dana-Farber Cancer Institute
Craig Bunnell, Dana-Farber Cancer Institute
Neil Martin, Dana-Farber Cancer Institute
Laura Dominici, Dana-Farber Cancer Institute
james tulsky, Dana-Farber Cancer Institute
Michael Hassett, Dana-Farber Cancer Institute
Presentation Materials: